About Be Loud! Sophie Foundation:

Be Loud! Sophie Foundation was founded in honor of Sophie Steiner, who was diagnosed with germ-cell cancer in November 2012, and died nine months later at age 15. But Sophie’s story did not end there. Before she died, she expressed her strong desire to help other adolescents and young adults diagnosed with cancer.  She wanted to create something entirely new: Support programs specifically designed to help patients her age hold on to their identity in the face of overwhelming illness.

MISSION:

To support adolescent and young adult cancer patients and their families at UNC Hospitals.

GOALS:

We are supporting two closely related efforts with the overall goal of enhancing the independence, dignity and identity of adolescent and young adult cancer patients:

Address the unique needs of adolescent and young adult cancer patients.  Cancer patients in this age group have unique needs and we want them to be treated as the emerging adults they are. The new AYA Program Director is spearheading this effort at UNC.

Support research efforts. The oncology world is becoming more focused on improving medical and psychosocial outcomes of adolescent and young adult cancer patents, and we are helping UNC build a research-based program that advances the national understanding of how best to meet the unique needs of patients in this diverse age group.

OUTCOMES:

Through these efforts, adolescent and young adult cancer patients and their families are receiving better care at UNC, and UNC is becoming a national leader in addressing the unique needs of this age group.

If you would like to stay informed about our progress, please join our (short and infrequent) newsletter, like our Facebook page and follow us on Twitter and Instagram.